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Getting to know you

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Sorry for the huge lack of original content lately but July and August are like Kryptonite to Creativity for this Mum. I have my beloveds home with me full time now for another 26 days before they go back to school and I can hold a coherent thought in my head for more than 16 seconds.

While glancing over the news from Autism World via Facebook I came across another one of these "Shock Horror - Autistic Person Demonstrates they can Think!" Youtube clips which I always have to say "Der!" to.

I mean, why is it only when the autistic person finds a way to reach the "normals" that those normals can accept that they are fully functional intelligent human beings?


And I couldn't help but wonder.... 
Why aren't these parents learning to understand their children before they exhibit these so-called savant characteristics?
Are they waiting for them to be fixed before they will truly connect?


This isn't a new thought for me. Since working on my Grace App and …

Tales from the World of Extreme Parenting - H is for Holidays

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However

As a mother of two children with severe Autism, I have travelled from Brisbane to Barooga, Dubbo to Dublin and beyond many times in the last 13 years.

At this time of year, some of you might be lucky enough to be planning your summer break - and perhaps dreading it after a negative experience in the past.

However, if you prepare and plan properly, taking into account your child's special needs, then it can be an enjoyable experience for the whole family.

Firstly - don't think you have to stay local. With a strong likelihood of rain for 10 out of the 14 days you have  booked, you may find yourself cooped up in a holiday house with no broadband, no cable tv and the prospect of hanging around the local supermarket for entertainment.

D'amusements do not work for people with high sensory needs, and they are expensive anyway. And Long walks in the rain followed by an Irish Coffee in a local pub are for romantic weekends away. Not a family of 4 with no clothes dryer.


So ta…

32 marathons hit Wicklow on a Sunny Day on Bray Seafront

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Mr Hammie, his two lovely sisters Moira and Maeve and a large number of other people were running, jogging and in Moira and Mr Hammie's case, Briskly Walking the 3rd of the 32 Marathons in a very sunny Bray, County Wicklow today.
Maeve, Moira and Uncle Gary came over from the U.K. especially to take part and raise funds for Irish Autism Action, The Irish Cancer Society and local Autism Groups and schools like our own Saplings Rathfarnham. We scooted around them in the Qashqai tooting and waving and after a trip to McDonalds and a quick pitstop at the Bray Amusements to use the loo, we met them on the very windy seafront for the finish.
Maeve jogged it and was in first, so we walked out to meet Aunty Moira and Daddy and Gracie helped them over the final straight:


Nearly at the finish line


A big hug for Daddy

Meeting Aunty Maeve in Pink, Moira in Black and Coach Uncle Gary holding the smokes and other refreshments for the Brave Finishers.
If you want to help top up Maeve and Moira's…

Retiring for a while...

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I have just passed the Irish Autism Action Baton on to the lovely Jen from The King and Eye


This is what I plan to be doing for the next few months...


Not Really, I am planning to be back here a bit more while spending a lot more time as a primary caregiver to Boo and Bratty, and preparing to focus on The Grace App.

Oh and our Mr Hammie will be running briskly walking a half marathon this Sunday 4th July along with my Sisters in Law in Number 3 of the 32 Marathons for Irish Autism Action and The Irish Cancer Society.
If you want to cheer him on he will be on Bray Seafront near The Martello Hotel from 10am. If you don't want to get out of bed but would like to help The Worlds Worst Fundraiser - here is his poorly subscribed MyCharity Link. Thanks to everyone who has already thrown in a few bob.

To sponsor my sister-in-law Maeve who lives in the U.K but is coming over especially with her husband Gary to do the run go to her much healthier Mycharity Link .


Thank you all for your mess…

Bereft

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My dear Auntie Glen passed away on Sunday 6th June after the second of two long battles with cancer.
It's not a cliche to say she was my inspiration. Hard working, naturally beautiful but also perfectly groomed and fashionably turned out at all times. Well read, intelligent, interesting and open minded, she taught me it was okay to be me from an early age - when being me wasn´t always being encouraged elsewhere.
Yep, she was as neurotic as the day is long and kind of fragile at times. Nobody can hold up the whole world on their own all the time. She was also very openly affectionate. Auntie Glen made you feel loved when you were hugged. And I loved to hug those bony shoulders and that bumpy chest.

She was a true light in my life. And I miss her so much.

When you live on the other side of the world from so many of the people that you love, you learn to take comfort in the fact that they are just "there" ready to be seen whenever you can get back to see them.
Or "th…

Mé féin ?

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Translation:
A mé féiner is a selfish person, someone who only looks after their own interests and possibly to the detriment of others.

I first heard of "mé féin" at a dinner out with a bunch of girls who all met while trying to improve a little South Dublin Autism School, and ended up becoming great friends in the process.

They were explaining about a local national school where parents had taken legal action to block a sibling enrolment, in order to move themselves further up the list.

So the family concerned now had two kids going to two different schools. Mé féin, Me First. Lovely. (NOT!)

Now my friends are not like this. We always worked together to improve things not only for our kids, but everyone else in the school, and hopefully elsewhere.

So who were these people who would pursue an objective that actually denies others the chance to benefit?
And then I thought about it a bit more and realised they were all around. Recognisable by their absence.

Their absence from …

Why FaceTweet?

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It has become almost fashionable recently to put down social media, mostly along the lines of "it's sad that you would want to relate to people online - that you wouldn't stop to talk to in the street"

or that you are somehow how unable to make personal contact and relate to people in person, hard copy face to hard copy face, because you are in someway socially inept.

And these people are often to be seen dipping in and out of said Social media - before pronouncing it all pointless - and in some way inferior. And by association that we who use it happily, are somehow inferior to these social elite.

And to that I say - who cares?


The point is that social media like Blogging, Facebook and Twitter have not replaced traditional communication and socialising, they have enhanced it.

And while I would have been previously limited to only meeting and engaging with people from a narrow common interest circle during the very small window of free time that my life allows me;

So…